You are here > Home The News Latest News $1000 Dodgeball Benefit
Wed 08 Sep 2010
Banner
$1000 Dodgeball Benefit PDF Print E-mail
Wednesday, 14 July 2010 01:27

Come join us for another $1000 Dodgeball Tournament to be held July 24th at Dewey's Beer Garden!  The action kicks off at 10 a.m., and it's for another great cause - all proceeds go to help with the treatment for and public awareness of 1p36 Deletion Syndrome.

dodgeballThe deadline to register your team is July 21st.  The grand prize is $1000, and competition will be held from 10 a.m. - 2 p.m.  The fee per player is $20.00 (teams consist of 6 - 10 players).  Dewey's Beer Garden is located at 2302 Rodd Field Rd.

Sponsored by:

  • Whataburger
  • H-E-B
  • TheCrushGirls.com
  • Dewey's Beer Garden

Download the Registration form by clicking here - fax it to (210) 395-6536.

For more information, contact Beau Culvahouse at (361) 438-4975 or syc92868@yahoo.com.

What is 1p36 Deletion Syndrome?

1p36 Deletion Syndrome is a congenital genetic disorder characterized by moderate to severe intellectual disability, delayed growth, hypotonia, seizures, limited speech ability, malformations, hearing and vision impairment, and distinct facial features. The disorder is also known as monosomy 1p36.

The condition is caused by a deletion (loss of a segment of DNA) on the outermost band on the short arm (p) of chromosome 1. It is one of the most common deletion syndromes. It is estimated that the syndrome occurs in one in every 5,000 to 10,000 births. Knowledge of the disorder has increased a great deal over the last decade, mainly because more patients have been accurately diagnosed and described in international medical literature.

KAYLEE

The tournament is held in honor of little Kaylee, who suffers from this syndrome.  You can read more about her story at www.kaylee1p36miracle.blogspot.com.

kaylee



Add this page to your favorite Social Bookmarking websites
Reddit! Del.icio.us! Mixx! Free and Open Source Software News Google! Live! Facebook! StumbleUpon! MySpace! LinkedIn! TwitThis Joomla Free PHP
Last Updated on Wednesday, 14 July 2010 01:48
 
TheCrushGirls.com on Facebook
Banner

Photo Gallery

Banner